Why diabetes should not be a private disease
It is not my aim to abolish HIPAA, on the contrary I do believe that medical information should be private for obvious reasons. Mine is an empowerment argument however and is about the diabetic owning their disease. The practicality of hiding their diabetes from Suzy at the office and the reasons behind doing so and why it shouldn’t be the case.
Diabetes is not one of the sexy diseases, it does not evoke deathbed struggles and majestic triumphant ticker tape parades when one effectively controls its. In fact today’s societal myopic views on the disease built upon myths, lies and stigmatization has made it quite the shameful closeted disease to those diagnosed with it.
The first thought that comes to many when someone reveals they have diabetes might not be one of empathy but rather blame and this has to be one of the very reasons why diabetes is not worn as a badge of honor unlike other chronic conditions.
Diabetes is s very personal disease, I am not arguing this fact and whichever way one chooses to live with the disease is up to their personal beliefs.Yet more and more we need people to come out of the diabetes closet and help raise awareness and eliminate the stigmas associated with it. As the old adage goes, there is strength in numbers.
Now you might be asking yourself why am I being recruited into the cause? and what has the cause done for me lately?
Just remember this the more people believe that diabetes is a self inflicted disease, the more people think that there is a simple cure for diabetes the tougher it is to get to find a real diabetes cure.
The catalyst for a diabetes cure is research dollars, these dollars drive many efforts into finding a cure for diabetes but to get there, perceptions have to change at the grassroots level.
It is not the most inspiring reason to come out of the diabetes closet but money makes the world go around and if you feel that this is not good enough of a reason, just remember what the ultimate goal in our fight is…
DIABETES AWARENESS=MONEY= DIABETES CURE
That being the why here is the how
If you want to share you battle with diabetes with someone beyond your close knit family, then you need to initiate the conversation.
This makes it your conversation to control up to and including your level of comfort with the information you are sharing. Answering questions might also help in dismissing any preconceived notions anyone might have about diabetes and most of all it helps spur dialogue in a positive way.
Remember to account for the fact that most people already have their own thoughts about diabetes, Good or Bad and be ready to hear some of these misconceptions explained, mostly in the lines I stated above.
So please share your story, it will surprise you the level of empowerment you achieve….